Our services begin at diagnosis, when a family realizes their life, as they know, it will no longer revolve around school activities, socializing, work and soccer games but instead it will be focused on understanding their child’s condition, navigating treatment options and resources while attempting to maintain a job as well as a sense of normalcy at home.
Home Needs Coordination
50% of caregivers indicate that they do not have time for themselves, nor do they get enough sleep.
Our goal is to avoid the mental and physical exhaustion often experienced by the caregiver and family during a critical health crisis lasting between a year and 18 months.
Our Family Care Coordinators will:
- Conduct a needs assessment and intake
- Connect families with resources they never knew existed
- Set-up online care community activities:
- Errands
- Child care
- Grocery shopping
- Household chores
- Yard work
- Pet care
- Transportation
- Fundraising events
- Meal coordination
- Set-up meal schedule
- Communicate dietary needs and preferences
- Provide recipe and meal suggestions
- Procure local restaurant gift cards
- Offer recipe websites for special dietary requirements
- Customized meal recommendations
- Set-up meal schedule
- Suggest Ways to help a family even from a distance
- Gas cards
- Restaurant cards
- Grocery Store cards
- Amazon wish list
- Special needs (like air purifiers, etc)
- Donate to family’s fund
Fundraising Assistance
“Cancer patients with insurance, spend about a third of their household income on out-of-pocket health-care costs outside of insurance premiums. Even as insurance coverage has expanded, deductibles and copays on policies have risen, leaving patients to shoulder more of the financial burden for their health care.”
Dr. Fumiko Chino
Financial Toxicity of Cancer Care
JAMA Oncology
Here to Serve harnesses the community’s help to ease the often devastating financial impact of a critical illness. Here to Serve:
- Promotes fundraising events
- Coordinates with local businesses who provide financial assistance
- Sets up a “fee-free” crowdfunding page that looks and operates like a Go Fund Me page
- Helps identify foundations to financially support families during a medical crisis
- Provides resources to help with co-pays and prescription drugs
Family Updates
Family Care Coordinators stay in touch with families throughout their journey communicating to friends and loved ones via the family’s Care Community about:
- Status or changes in child’s condition
- Struggles the family faces emotionally, financially and with the their own health
- Specific needs the family has
- Spiritual community support
Our goal is to compassionately assist families with a flow of information joining with friends, neighbors and loved ones who wish to help providing them tools to be effective and organized in their support while being respectful of the family’s privacy and need to have undisturbed time alone.
DONATE Sponsor Family Care Coordinator Services
JOIN Join a Care Community
Get Help Are you, or someone you know, going through a health crisis?
Resource Referrals (External Resources)
Here to Serve Family Care Coordinators help families navigate and demystify the variety of nonprofit, professional, and business services available. They:
- Respond to family’s urgent, unforeseeable needs
- Design plans and identify and secure service providers that meet the family’s needs
- Help families/caregivers apply for and receive services including financial assistance, transportation (ground/air) lodging, respite, wish requests and more
- Provide referrals to counseling services for medical and/or legal advice.
- Match families with Informed and sensitive volunteers who themselves have gone through life-and-death crises (when possible)
- Provide referrals to professional mental health counselors who are free or offer a sliding scale payment for services
- Offer tools to organize and compile medical, insurance and legal information
- Offer volunteers who provide individualized spiritual support
- Books and informational materials (spiritual, practical and encouragement) resource list
Learn more about Resource Referrals